Organizations
Organizations
Many groups are doing great things for children with kidney disease
Tell us about your organization
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 ARPKD/CHF Alliance
 Camp Sunshine
 Foundation for IgA Nephropathy
 Nephcure Foundation
 Prune Belly Syndrome Network

Camp Sunshine is a family retreat in Maine with dedicated sessions each year for renal disease and solid organ transplantation.

ARPKD/CHF Alliance provides education and research support for autosomal recessive polycystic kidney disease and congenital hepatic fibrosis.

Foundation for IgA Nephropathy runs an active and informative mailing list and website for anyone interested in IgA nephropathy.

Nephcure Foundation is dedicated to finding the cause and the cure for nephrotic syndrome and focal segmental glomerulosclerosis (FSGS), through research support, political advocacy, education, and awareness.

Prune Belly Syndrome Network provides support and information about prune belly syndrome (PBS), including online forums and newsletters and an annual convention.

 Alport Syndrome Foundation

Alport Syndrome Foundation provides information for patients, maintains a patient registry, and funds research into Alport's syndrome.

 Cystinosis Research Network

Cystinosis Research Network supports and advocates for research, runs several assistance programs for families, and educates the public and medical communities about cystinosis.

 Oxalosis and Hyperoxaluria Foundation

Oxalosis and Hyperoxaluria Foundation promotes research to find a cure for oxalosis, primary hyperoxaluria and related stone diseases and works to improve the care and treatment of those affected by these conditions.

 PKD Foundation

PKD Foundation supports a research mission that has progressed from basic research to drug development.  They also provide information packets and online and in-person activities to benefit those affected by polycystic kidney disease.